About Friedreich's Ataxia

Friedreich's Ataxia (FA) is a rare, genetic, neurodegenerative, multi-system, life-shortening disorder. About 1 in 50,000 people in the United States has Friedreich's Ataxia.

Onset of symptoms is usually between the ages of 5 and 15. However, some patients are diagnosed with late onset FA.

Common Symptons

Loss of coordination (ataxia) and muscle weakness in the arms and legs leading to a wheelchair
Vision impairment, hearing loss, and slurred speech
Aggressive scoliosis (curvature of the spine)
Serious heart condition (cardiomyopathy)
Diabetes or carbohydrate intolerance
Excessive fatigue, severely reduced energy
Difficulty with breathing and swallowing
All mental abilities remain intact

Benefit Goals

Hole Out For A Cure is raising money to help drive research forward - basic, translational, and clinical - through research grants, workshops, and the collaborative exchange of information within the scientific community.

This money also benifits patient advocacy groups to educate the public, elected representatives, and other government officials regarding Friedreich's Ataxia and the importance of funting biomedical research.

Research Ripple Effect

The scientific and medical advances that Hole Out For A Cure helps fund can also have a powerful and beneficial impact on the entire medical community for related mitochondrial dysfunction diseases and others like:

MDA Diseases (ALS, SMA, and others)
Fragile X Syndrome
Lebers Hereditary Optic Atrophy
MELAS and MERF
Stroke
Parkinson's
Huntinton's
Alzheimer's
Diabetes

September 8, 2014
Country Club of Peoria Golf Course
11:00 a.m. - 6:00 p.m.